Welcome to the Comfort Centre of Hope
IMPROVING HEALTH AND QUALITY OF LIFE FOR CHILDREN LIVING WITH SICKLE CELL DISEASE AND THALASSEMIA IN LEICESTERSHIRE
WHAT IS SICKLE CELL DISEASE ?
SCD is the most common monogenic blood disorder worldwide. It is associated with progressive organ damage coupled with episodes of acute illness.
Health indicators have generally improved over the last ten years, but they remain unsatisfactory and disparities continue to exist across the country. Life expectancy increased from 45 years in 2003 to 52 years in 2008; HIV prevalence reduced from 27% to 7% between 2000/01 and 2007/08; polio and guinea worm were nearly eradicated and the prevalence of other vaccine preventable diseases has declined sharply.
Worldwide, the burden of Sickle Cell disease (SCD) has not been amply addressed. A situation aggravated by limited and inaccessible formal social support structures to aid patients and families cope better with the psychosocial burden of the disease. In addition, this has been coupled with stigmatization and discrimination of people living with sickle cell disease causing isolation from family and society.
Worldwide, Sickle Cell Disease contributes a significant burden that is not amply addressed. It is estimated that 312,000 children is born worldwide with SCD annually. With the greatest burden existing in Sub-Saharan Africa, where 75% of the world sickle cell disease occurs.
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To help avoid the rising SCD crisis
We invest in local solutions to the local community to provide treatments which include Bone marrow transplant, also known as stem cell transplant, which offers the only potential cure for sickle cell anaemia and the medications required [Antibiotics-Pain-relieving medications-Hydroxyurea]